The state cut a program that supports people with disabilities in disasters. Advocates are alarmed

State regulators quietly cut funding late last year for a program that supports people with disabilities during disasters in Southern California.

The cuts came about a year after the most devastating fires in L.A. County history leveled thousands of homes and killed at least 31 people, most of whom were older and had access and functional needs.

Independent living centers are sounding the alarm, with experts saying such programs should be expanded, not cut, and that the loss of the program leaves people with disabilities even more vulnerable to increasingly severe disasters fueled by climate change.

The background

The Disability Disaster Access and Resources program, or DDAR, provided backup power batteries as well as personal emergency planning for people who rely on electric medical equipment, refrigerated medications, or otherwise are particularly vulnerable during power outages and disasters.

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It was established after the 2018 Camp Fire, which razed the Northern California town of Paradise and killed at least 85 people. It was primarily geared towards providing support to people with disabilities in the event of public safety power shutoffs, which are when electric utilities proactively shut off power during high winds and risky fire conditions.

In 2023, the program launched in Southern California Edison territory. It was funded by a small charge on Edison ratepayers’ bills.

Edison provided portable backup power batteries for free, while the state’s network of participating independent living centers helped install the batteries. They also provided education and direct outreach to clients, as well as connected them to free temporary housing in the case of extended power shutoffs.

Since 2023, the program has supported Southern Californians during nearly 600 public safety power shutoff events, providing more than 1,000 hotel stays and delivering hundreds of backup batteries, according to the California Foundation for Independent Living Centers.

Disabled community sounds alarm

The state’s public utilities commission cut the program in Southern California Edison territory during the utility’s latest general rate case. Before it was cut, DDAR was allocated nearly $2 million in funding per year through 2027, but state regulators said ratepayers shouldn’t be on the hook for a program that they argued duplicated similar programs, such as the company’s existing portable backup power program and its partnership with 211 LA, which screens and refers callers to needed resources.

But 211’s own director, Maribel Marin, disagrees.

“It’s a program that needs to be expanded, not reduced,” Marin said. “We feel it was complementary.”

Marin said 211 does screen callers for backup power needs — they enrolled more than 2,000 callers in DDAR last year — but doesn’t have the staff to conduct in-person education and individualized emergency planning. Before the cut, she had been pushing for the program to expand eligibility beyond high fire risk zones.

“ We mobilize for the disaster, but we're not investing in capacity building,” Marin said.

She pointed out that 211 on its own has not seen an increase in funding since the early 2000s. DDAR had helped fill some of the gaps, she said.

Meanwhile, Marin added, the population with access and functional needs is only growing: by 2030, about 30% of the population of L.A. County is expected to be over the age of 60.

“ What was lost over that time was all our disaster preparedness capacity,” Marin said. “Now, we’re having people do double duty.”

Personal planning builds resilience

The Service Center for Independent Life in Claremont serves communities across the Inland Empire, southeast L.A. County and San Gabriel Valley. They delivered more than 240 backup batteries through DDAR.

“When we drop off a battery, we don't drop off a battery,” said executive director Larry Grable. “We go into the house, we help set it up, we teach the people how to use it, how to make sure it's charged, how to recharge. And then we spend time to set up an emergency plan.”

That type of one-on-one connection and education year round — especially with people with lived experience with disabilities thanks to the partnership with the state’s independent living centers — is what made DDAR unique, he said. While the center still has some batteries left, they don’t know what they’ll do once they run out. Since the program was cut, Grable has had to lay off staff and work overtime to fill the gap. He's seeking grant funding as well.

Keith Miller, executive director of L.A.-based Communities Actively Living Independent & Free, said the center previously had two DDAR staff members — now they’re down to one.

“It's a huge impact in regards to what we want to do,” he said.

That includes things like building free “go bags” for clients, making accessible flyers and educational materials about preparing for emergencies, and doing direct outreach with clients.

Dozens of disability organizations across the state called the elimination of the program “contradictory and dangerous” in a letter to the public utilities commission in November. The letter calls for funding to be restored through at least 2027.

“We fear greatly when the next public safety power shut off, the next earthquake, the next fire happens in Southern California because we don't have the staffing to support it,” said Lisa Hayes, director of the California Foundations for Independent Living, who wrote the letter. “What it's going to take is for people with disabilities to die in order for somebody to listen.”

The program may be reconsidered during Edison’s next general rate case, but that’s not likely to be revisited until 2029.

“We recognize that DDAR’s deep expertise and personal engagement were valuable, and we are actively working to preserve critical knowledge and strengthen partnerships with community-based organizations to address any gaps,” said Edison spokesperson Gabriela Ornelas.